As one might expect, navigating life with an invisible illness is one challenge followed by another. Beat one. Greet one. Every. Day. Nothing prepares you for the constant fatigue, pain and mystery symptoms du jour – or the endless questions regarding medications and treatments (and let’s not even get started on insurance issues – holy mother of all things bass-ackwards!). You would think that it helps being a nurse – that I would understand more, making it easier for doctors to explain health matters to me. To an…

disability

With hospital systems and insurance companies requiring increased quantity of patient appointments rather than encouraging better quality interactions, no wonder I have encountered many frustrating doctors in the course of my disease. Don’t get me wrong, I have met my fair share of great doctors who provide me with the incredible care I have received over the past 2 and a half years. But most physicians are booked at 15 minute intervals–and it literally takes me 15 minutes to list the diseases I have and the medications I…