Sarah Beth, RN.
disability

A new year comes yet again and we resolve once more. This year I propose to you this: we need a new resolution because this may be the year you get...

I have been in the dark for a few months. Looking back, I think I have narrowed it down to a botched infusion of intravenous immunoglobulin, IVIG, that I received in...

sick

In one month, I will have been sick for four years. I never thought something like this would happen to me and it comes with many challenges. I’ve found that in...

disability

In the bleak winter that is life with a chronic illness, it is hard to remember that there is, in fact, a spring. The snow begins to melt, and flowers do...

There are no shortage of chronic disease complications when you deal with chronic illness and complicated treatments. It has been nearly two weeks since my last treatment and my IV puncture...

disability

It is true, the healthy don’t understand what it means to have a chronic illness. I used to get upset when my friends would say, “Hey, I’m coming in to town,...

We reached downtown just as the sun began to set. San Francisco at dusk is a bustling place. Brakes squeaking, fluorescent lights flashing and illuminating windows of bars and restaurants. Rush...

Karolyn Gehrig has an invisible illness, but #HospitalGlam makes her feel less invisible. Her recent feature on Huffington Post says she was diagnosed with Ehlers-Danlos Syndrome,  a genetic connective tissue disorder...

disability

As the New Year is upon us, I can’t help but think about resolutions, goals, the future–and what that will look like. For the chronically ill, the future doesn’t necessarily seem...

I wanted to give you a road map: How to get through the Holidays when you have a chronic, sometimes invisible, illness. I started with good intentions, but I’m finding it...