Sarah Beth, RN.
disability

Being sick changes you. For a host of different reasons, I’ve caught myself daydreaming recently–remembering moments in my pre-sick life where I felt normal. My sense of normal was pretty ridiculous....

disability

I recently came across an article in the Health & Science section of The Washington Post: Hit by a car, an emergency doctor experiences firsthand the shortcomings in ER care. I almost...

In an age where technology dominates our medical world, communication between patient and doctor often leave me wanting. Over the last few years as a patient, I have learned a number...

As one might expect, navigating life with an invisible illness is one challenge followed by another. Beat one. Greet one. Every. Day. Nothing prepares you for the constant fatigue, pain and...

disability

With hospital systems and insurance companies requiring increased quantity of patient appointments rather than encouraging better quality interactions, no wonder I have encountered many frustrating doctors in the course of my...

An NIH study points to autoimmunity as the underlying cause of more than a hundred life-altering, chronic illnesses and that 75% of those with autoimmune disorders are women.  I’m one of them....

sick

Patient engagement is a trendy topic for healthcare providers – the latest spin terminology for “patient compliance” – as in how do I get patients to follow treatment protocols? Take better...

Zebra Retreat. No, it is not a new safari resort in Africa. It is not a ride at Disney. Not a new game rivaling Angry Birds. And it is not a...

disability

Well, my first round of IVIG is finished. Initially, I was due for 6 treatments over the course of 3 weeks. Each dose of 1 gram/kg. After getting aseptic meningitis after...

Susannah Cahalan, a journalist for the New York Post, was afflicted with a very rare autoimmune disease called anti-NMDA-receptor autoimmune encephalitis. Where my type of autoimmune disease affects the nerve roots...