I had to check in at 7am. The system ran beautifully. After the nurse ran my vitals and took my weight, we were given a beeper. When that goes off, they would bring me back to see the doctor. Because I was an add on for the day, we had to wait until a doctor had a cancellation. Less than an hour later, the beeper sounded.

I must say I was nervous walking back to the consultation room.

My initial consultation was with an internist: Dr. Hurt, ironically. I couldn’t help but wonder if he will be the one to fix MY hurts. He went through my symptoms systematically and diligently. No stone was left unturned. I finally was in front of a physician who did not rush. He took me seriously. He told me he would look for the Zebra that is causing my sickness. A breath of fresh air.

Music to my ears during the consultation: “I will own your case”. Not once in 3 months have I heard those words.

After the physical exam, Dr. Hurt sat down with me and my friends and explained what tests he was going to run and what specialists he wanted me to see.

In the afternoon, I saw an infectious disease specialist. He did not seem to think that my illness is connected to anything infectious. The big thing he said was that he did not think it was postherpatic neuralgia–which was the best guess of all my physicians at home.

To be honest, I was pretty upset after this consultation. I wish he had done more testing. But my friends reminded me that I need to trust his experience and intuition that what I am experiencing is not related to an infectious process. I do feel the need to bring up my concerns about the consultation when I see Dr. Hurt again on Monday.

Monday will be busy:

Physical Medicine. Sleep Medicine. Internist (Dr. Hurt). Neurology. Possibly Immunology–if I can be an add on.

Right now I’m in my hotel room. I’m very tired even though I’ve only been up a couple of hours. I’ll drift off to sleep to the sight of Jeremy Lin playing incredible basketball.

Before I left for the Mayo Clinic I made sure I was hydrated:

IV fluids

IV fluids are the best! A little NS and LR and I was on my way!

My flight schedule was nothing less than intimidating:

Norfolk –> Detroit –> Minneapolis –> Rochester

It may not look terrible to most, but to me it felt like running a marathon without training. Here I am at the airport:

me in airport

 

My travel buddy and I had a few hurdles to overcome on the way. Despite the broken shoe, late wheelchair, and a shirt that perpetually set off the metal detector, we made it the full 26.2 and arrived at the Mayo Clinic late afternoon today.

Tomorrow my day starts early. Check in at 7am.

Tomorrow will be a long day full of blood work, tests, and doctors; I sure hope it holds answers.

Mayo

I never thought my second trip to the Mayo Clinic would be for serious health issues. I am headed to chilly (or should I say freezing) Rochester, Minnesota next week to seek answers to an unknown illness I’ve suffered for the past three months.

I have received so much support from friends, twitter followers, and loyal blog readers–and I truly appreciate it. Your kind words during my illness have reminded me to keep going and to know there will be and end to this–and I hope my end will be found here at Mayo.

I am very weak and have not had the strength to write over these past three months. That being said, I am going to attempt to blog my journey to Mayo. My hope is to document, if only for myself, what a patient experiences as they travel to Mayo to seek answers to what seem like hopeless medical problems.

Stay tuned.

Sam Houston State University drafted a social media policy which left many of the students upset. The students protested with a “free speech wall” that allowed students or faculty walking by to write anything they wanted on the wall. Yada, Yada the police chimed in and the students took down the wall. Read the full story here if you’d like (thanks @nursingpins for the article).

What bothered the students so much was in the draft, the school required that any campus related social media account (Twitter, Facebook, etc) had to give the school administrative access. The school then had the power to edit and censor information on these pages.

I’ll give the university props for at least attempting to assemble a social media team and creating a draft policy.

But I must ask, what is social about a censored account?

In my last post, Social Media Policy: Why your hospital needs one, I suggested that social media policies need to be inclusive, not exclusive. Allow your employees, or students in this case, to create an honest social space. That is where true marketing happens. When someone real, and uncensored, recommends your hospital (or school).

Let’s be honest. You can’t control what is said about you online. But you can create your own social spaces and become a part of what people are saying about you.

Let’s be honest. Let’s be real. Let’s be inclusive.