Six More Weeks of Sickness
Well, it has been about six weeks since my trip to the Mayo Clinic for answers. In my previous posts, I let you in on what the Mayo Clinic had come up with. That being said, I needed to get off most of the medications I was put on orginially and add a “miracle medication” that should help the pain.
I use quotations to highlight the fact that there is no miracle medication. In fact, it has not even touched my pain.
And I’ve grown more sick.
About two weeks ago I developed tachycardia. My resting heart rate was anywhere from 100-125. And at times reaching the 145 mark. This has resulted in multiple ER visits, more specialist appointments, and overall frustration for this patient.
Because of the tachycardia, I had to stop taking the ‘miracle medication” from the Mayo Clinic. In fact, the doctors suggest I get back on a medication that I spent 6 weeks weaning off of.
The irony in the situation is I am right back where I was 2 months ago– pre Mayo. I’m in pain. I have debilitating symptoms: orthostatic hypotension, tachycardia, and shortness of breath.
My wonderful cardiologist agreed to see me the day after I called him at his home number. Luckily, I know him well from my church. He agreed to help me and see me through to the end. I should have called him 5 months ago when this whole ordeal began. He believes the tachycardia is an autonomic dysfunction. He isn’t sure of the cause, but believes it has something to do with my autoimmune thyroid disease. I need to see an endocrinologist. The first available appointment is June 8. sigh. It is funny, after being sick for 5 months, there are STILL specialities I have not seen.
And so I wait. Take medicine. And attempt to manage my symptoms.