disability

A new year comes yet again and we resolve once more. This year I propose to you this: we need a new resolution because this may be the year you get cancer. At year’s end, we are challenged to think back on it, the highs and lows, to reflect and to take the opportunity to make alterations and revisions for the year to come. Resolutions come in many forms, but the most common are health and lifestyle modifications: How can I live a more healthy lifestyle? I want to…

We reached downtown just as the sun began to set. San Francisco at dusk is a bustling place. Brakes squeaking, fluorescent lights flashing and illuminating windows of bars and restaurants. Rush hour traffic cramps the streets. Street lights begin to light one after the other. You can catch a host of different people walking during this time. A young twenty-something wearing a beanie and a messenger bag, coffee in hand, surely heading to a poetry reading or open mic night. The business savvy woman in heels hustling to…

Karolyn Gehrig has an invisible illness, but #HospitalGlam makes her feel less invisible. Her recent feature on Huffington Post says she was diagnosed with Ehlers-Danlos Syndrome,  a genetic connective tissue disorder in 2003 and has since had many hospital visits, doctor appointments, and various medical testing–something those of us with chronic illness are very familiar with. According to Huffington Post, she started #HospitalGlam to help with the stigma that those with chronic illnesses deal with regularly. Check out her website. Others with chronic illnesses have joined in on…

As one might expect, navigating life with an invisible illness is one challenge followed by another. Beat one. Greet one. Every. Day. Nothing prepares you for the constant fatigue, pain and mystery symptoms du jour – or the endless questions regarding medications and treatments (and let’s not even get started on insurance issues – holy mother of all things bass-ackwards!). You would think that it helps being a nurse – that I would understand more, making it easier for doctors to explain health matters to me. To an…